Jennifer Karen Corkrey O'Hara
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Sharing Stories about Jennifer and other Inspirational stories of Courage, Love, and Hope !!!  I love you and miss you Jennifer !!!!

  • The Miracle Mets…

    March 11, 2009

    If you are a real baseball fan, you know all about the Miracle Mets.  This was a nickname given to the 1969 New York Mets. The miracle was that the Mets who had never finished better than 9th place in a ten-team league won the World Series.
     But last year, the Miracle Mets struck again.  I’m not talking about the New York Mets.  I’m talking about the Central Loudoun Little League Mets coached by yours truly.

    In reality, our team was pathetic.  I kept telling them that they were the most talented team I had ever coached.  What I didn’t tell them was that their talent didn’t include baseball.  Some of them could sing.  Some of them could tell funny stories.  Some of them had really good grades.  These are all great talents.  But only about half of them could actually play baseball.

    So the 2008 Little League season began and the Mets began losing baseball games.  We would win a game, and then lose three games.  We would win another game and then lose four more games.  There were some games that were so bad, I would pray for a rainstorm to come and end the pain.  All during the season I kept telling our players that the regular season was just practice for the end-of-the-season tournament.  That seemed to make them feel better about the season, but the way things were going, I was sure the tournament would just be a continuation of the regular season.  So the 2008 Mets ended the season in next-to-last place. 

    At this point, something interesting happened.  As we prepared to go into the tournament, I started hearing the kids talk about winning.  After a few days, I realized that they actually thought we were going to win a couple games.  In fact, I noticed that they were talking about the Championship Game.  Without knowing it, I had built hope in these kids.  They actually believed me when I said that we could compete in the tournament.  Now I was stuck.  Our chance of surviving the first game was slim to none.  But I didn’t want to deflate our team’s fledgling spirit, so I began telling them to play their very best…to give it everything they had.

    Our first game was against the Rockies, and our kids played way over their heads…AND WE WON!  Then came the second game.  We were playing the Nationals.  We had played the Nats twice in the regular season, and both times they creamed us.  But our boys were determined to win.  We actually started pretty well.  We jumped into the lead right away.  But then we had a bad call at third base.  The call ended our momentum.  Because of the nature of the call, I went through the formality of entering a protest into the scorebook, but the damage was done.  Our boys were not able to bounce back, and we lost the game and we were out of the tournament.

    After the game, I took our team to the ice cream store and bought them all cones.  I gave them a final Way To Gospeech and went home.  It had been a tough season.

    Then the miracle began.

    Later that night I received an email from the president of the league informing me that there would be a protest hearing.  To make a long story longer, the protest was upheld, and the Mets and the Nats would have to play again at the point of the protest.  I immediately sent out an email to our team telling them that we were still in the game.  When we met a few days later, the boys were on fire!  They were ready to play.  WE BEAT THE NATIONALS!  

    Next up…The Marlins…and another miracle. We won!


    Now we were in the Championship Blue-Gold Game.  I would like to be able to tell you that we won the Championship Game. That’s the way these stories are supposed to go.  However, the truth is that the Tigers creamed us.

    But we didn’t care.  We made it to the Championship Game with a team of struggling boys who had hope.  It was a miracle season.  I have seen each one of these boys since that time, and each one of them always smiles when we talk about the Miracle Mets.  They will remember this season for the rest of their lives.

    What’s the point?  It’s this.  I inadvertently built hope in this team.  I would like to say that this was strategic action on my part, but I didn’t realize what I had done until after it happened.  I kept telling the boys that the regular season was just practice for the tournament.  They thought I expected them to win the tournament.  So they played to that expectation.

    Last Sunday, Rob Spradley taught us that Lasting Love Expects The Best.  He said, “People tend to live up to your expectations of them.  So, don’t tell it like it is, tell it like it could be.”
    The Apostle Paul said, “Love never stops hoping.”  I Corinthians 13:7  (GW)

    Here is how you can live out the Sermon on Monday (and Wednesday).  Find someone and set them up for success.  How do you do that?  Well, you don’t set them up by nagging, by saying things like, “You always do that” or, “You never do that right.”  That only perpetuates failure.  You set them up for success by letting them know you expect the best from them.  Don’t keep reminding them of their failure.  Keep telling them what it could be.  Talk to them about how God sees them and what they could become.  Treat them the way you want them to become, not the way they are and who knows.  You too may see a miracle unfold in front of you. 

    Well, baseball season is rolling around again.  Once again, I am coaching The Mets.  We have a new crop of players.  I think this may be the most talented team I have ever coached.

    Blessings,
    Coach Greg Wigfield

    “I will show you my love forever.  So says the Lord who saves you.”  Isaiah 54:8 (TEV)


    If you have missed any of the messages from the 40 Day of Love series, you can listen to the podcast at www.destinychurch.info.

    P.S.  This devotional is part of a six-week spiritual journey of Destiny Church.  A super special "Thank You" to Tanya Burke for passing along this really nice story from her church.

  • Jimmy V Foundation for Cancer Research - Truly Inspirational

    2009, February 3, 2009 - Speeches - Jim Corkrey

    For this assignment, I chose a speech “Don’t give up, don’t ever give up” given by Jimmy Valvano, head basketball coach at North Carolina State University. Valvano and his team won the 1983 NCAA Basketball Tournament.  This emotional speech was delivered to a live audience during the 1993 ESPY Awards shortly after he was diagnosed with bone cancer and just two months before his death (Wikipedia, 2009).My first impression of “Jimmy V”, as he was known, is that he is nervous and emotional, but professional.  He is crying.  His passion for his own life and his desire to help others is immediately apparent in his delivery and attitude.  His mood is full of gritty determination; his intentions are to give hope despite knowing that he only has a short time to live.  The purpose of his speech is to accept the inaugural Arthur Ashe Courage and Humanitarian Award and to announce the establishment of the V Foundation for Cancer Research (ESPN, 1993). http://www.youtube.com/watch?v=HuoVM9nm42E

    During his inspirational speech, Mr. Valvano offered this touching advice:

    “To me, there are three things we all should do every day; we should do this every day of our lives. Number one is: laugh. You should laugh every day. Number two is: think. You should spend some time in thought. And number three is: you should have your emotions moved to tears, could be happiness or joy. But think about it. If you laugh, you think, and you cry, that's a full day. That's a heck of a day. You do that seven days a week; you're going to have something special” (ESPN, Valvano, 1993).

    In Mr. Valvano’s speech his language is fluid and polished as one might expect from a television broadcaster and former coach.  His skills as a motivator certainly served him well during this speech; his ability to perform in front of a large audience shines through in this “performance.”

    Jimmy V had more credibility than a room full of US Presidents.  In this speech, it showed.  He mentioned that he is not using cue cards, which signals to any audience that the words and emotions are coming directly from his heart.  His delivery comes across and honest and genuine (Pfeiffer, 2007, p.132).  It may be nearly impossible to find a human being that does not believe in the credibility of his passionate speech.

     

    Resources

    Wikipedia. (2009). Jimmy_Valvano. Retrieved February 4, 2009, from http://en.wikipedia.org/wiki/Jimmy_Valvano

    ESPN. (1993). ESPY Awards [Television]. Bristol, CT: ESPN Original Entertainment.  Retrieved February 4, 2009, from http://www.youtube.com/watch?v=HuoVM9nm42E

    Pfeiffer, W.S. (2007). Pocket Guide to Technical Communications Fourth Edition.
    Upper Saddle River, NJ: Pearson Prentice Hall.

  • Da and his Pet Turtle

    January 2009
     

    When I was young I had a turtle that my mother bought for me in the Ten Cent Store - (that's what we called Woolworth and Grants and Kresge) - they used to have a lot of turtles .  They were small - about the size of a silver dollar and some of them had their shells painted with different colors and designs - I think mine was blue.  I kept him in a glass refrigerator dish with some water and a rock in it and I fed him lettuce or turtle food that came in a box and sometimes some hamburger.  Sometimes I would fill the bathtub with water and let him swim around and sometimes he would get out of his dish and it would take days to find him around the house - I remember one time when I found him climbing up the lace curtains in the parlor  :o)
    Love, Dad and Da
  • Da and the Dolphins

     

    December 2008
     
    When I was a young lad in the Navy and at sea we could see the dolphins off on the horizon coming toward the ship.  When they arrived they would fall in on both sides of the bow of the ship and stay with us for hours - always a happy occasion.  I think that God made them to bring some happiness into our lives.
    Love,
    Dad, Da & Ron
     
  • Lots of Love from the Brills

    6-19-2008

    Hi Jenn!
    Just wanted you to know that we are thinking about you and sending you lots of love and prayers!  Every night when the girls go to bed, we say a special prayer for you and they often ask, "Have you heard how Mr. Jimmy's sister is doing?"   The website is a wonderful way to keep us in the loop.  We are grateful for the updates and messages. 
    School here is ending today - hard to believe another year has passed.  Reagan will be starting 3rd grade (like Erin) and Lauren will be moving up to Middle School in the Fall.  They are both doing well - excelling in school and sports.  Reagan plays softball and Lauren plays soccer.  They both have made All-Star teams and we are preparing to go to the State Tournament next week for softball.  We love to watch them while they play, but we are looking forward to the break as well.  Hopefully we will get a chance to hook up with your brother as soon as we don't have someone's practice every night!  I am starting to forget what he looks like!  :)
    That's really all the news here.  Hang in there and know that people all around the country are pulling for you and cheering you on.  You are a great inspiration to so many.  We will continue to pray for your improved health and are constantly hoping that the doctors gain the knowledge to help you to be pain free and well again.
    Our love to you, Brendan and your Dad-
    Rachel, Mike, Lauren & Reagan 


    Jenn's reply...........on 6/25/2008
    Hi Sweet Rachel & family,So nice to receive this lovely email. Thank you very much taking the time to let me know that you are thinking of me & Brendan & Dad & keep me ion your prayers. I am sorry it has taken me so long to respond. Our daughter (my stepdaughter) Megan just married this past Saturday. So we have been super busy as you know how weddings go & then had great visits with Brendan brother & sister & my sister & niece all from the East & Utah. It was so great to have family here.  We have needed the physical touch of our siblings for a long time now. Especially lately. I go completely blind for a min. of 7 hours a day & usually more. I have a teacher who comes in 2 x's a week to teach me how to be a woman that is visually impaired. Today I started to learn braille. WOW that is going to take some time. Do you know it? Do you have any blind kids in your class? Because if I remember correctly you teach special ed, but I may remember wrong. Anyhow, I must go because I am not sure how long I will have my sight as it comes & goes with no notice or warning & I must get as much as I can done while I can see. Please let me know how the girls did with the sports. Wish I was near so I could see them. Give my hello's to Mike & the girls & tell them I love them & that I have smiles because of them  thinking  about me & praying for me. All my love,Jenn
  • Jenn Continues to Battle

    6-8-2008 

    Hello Family and Friends,
    I hope all is going well with you and your families.  It's just amazing how much time flows in and out of our lives.  2-4-06 seems like it was just yesterday and we were celebrating Jenn's wedding.
    I had a great talk with Jennifer on Saturday and really gained a better understanding of how her disease is affecting her now.  It's been quite a dramatic change since I last wrote you.  I wish I could say it's a dramatic positive change.  It isn't positive.  Jennifer is now without sight for more than 7 hours a day.  She's been receiving counselling and training to deal with the reality of becoming blind.  She's also struggling with depression and the incredible pain.  She not a real pleasant person to be around at this time Brendan and Dad tell me. : ) UNDERSTANDABLE !!!
    Just a quick story and then I will beg you to please write a quick article for Jenn's website........ but first my story.......
    Right after high school, a very close friend of mine, Steve Reavis was diagnosed with Cancer.  Back then, I thought young people with cancer don't die, they are just sick and get better.  I kept calling Steve and asking him to come out with us or meet us for some party or whatever.  It wasn't until long after Steve died.  In fact, it wasn't until my Mom and Missy's Dad, Steve, died that I understood that people with serious illnesses don't come out to party.  They are trying to survive.  Part of my stupidity at the time was that I didn't know what to say to Steve.  I was afraid to go see him and have to face the scary reality of his possible death.  I'd never been there - now I have.  Don't be afraid - she really needs some cheering up.  Thanks for all you've done in the past !!!!  THANK YOU.
    I'm begging you to please write something for Jenn.  Just a few sentences, just a quick 2-3 liner that I can post on the site.  If you could take 5 minutes a week and shoot her an email, I would be most appreciative as well.
    Jim
  • 6-9-2008

    Jim,

    I sent this email to my family. My Mom has added Jenn to her prayer list at her church. We pray that everything improves for Jenn. As you know my daughter when thru 2 surgeries and she has been able to control her disease with a shunt and drugs. She has had many problems with her vision but everything has stabilized. Let’s pray that better times are around the corner for you, Jenn and your families.
    --------------------------

    Dear Fellow Duffer,

    My daughter has this same disease but she has recovered from her 2 surgeries without any of the problems that have affected Jenn. I know how painfully and debilitating this can be for the patient and their family. I plan to give and hope everyone will give something to help Jenn and her family. Thanks. Hack Stacey

     

    Thanks so much Hack - your thoughts and efforts are greatly appreciated. Jim

  • Jenn's Big Heart

    June 6, 2008 by Katie Johnson

    I don’t know how Jenn  makes it through each day!   I know we all have trials in this life to help us grow, but I have always prayed that my trial would not be to endure pain.  I think it would be hard to be a happy, positive, uplifting person in those kinds of conditions.  I believe I would give up.  But not Jenn!   I admire the strength she has had, and continues to have, as she faces each new  day.  What an amazingly strong person.  And despite what she is going through she still manages to continues to share her love by send everyone her cute hand -made cards, being a lovingly mentor, and supporting all her NA friends.  Jenn  has a heart big enough to save the world.  .   . and she would save everyone in the world if she could. 

    ---------------------------

    I hate the fact that I live so far away from Jenn!  Not only has she been my sister but always my Best Friend.  I have spent many hours talking to Jenn on the phone.   Most of the time I listen to “Calling On Angels” play in the background of her cell phone as I await in hopes she will answer her phone.  But most of the time I end up talking to myself, singing songs to her or  telling her my terrible jokes to try to keep her spirits up.  It is so hard to be so far away and not be able to do anything to help.  There are so many times I want to be there for her.   I want to be there for her to just hold her and cry with her.  Like the countless number of times, she has been to the ER in excruciating pain and the best they can do is to treat the symptoms.  Or, the 11 trips to the hospital knowing what she has to go through in hopes that, at best, the pain will be tolerable.  While the whole time you are crying from the depths of despair  to have enough  strength to get through  yet another  surgery.   It is one thing to go through surgery knowing that your life will be better afterwards, but how do you endure surgery after surgery when they tell you they do not have a cure for this disease that is destroying your life.  I cannot tell you of the heartbreak I feel when I hear my little sister say, “Kath, I don’t think I can do this anymore!”

    IIH is a disease that steals one’s HOPE  & DREAMS.   Take those away and what do you have?   For Jenn it is still being able to share her LOVE.    Nothing can destroy her BIG HEART.  Not even IIH!

    ---my sincere apologies to Katie for misplacing this story for a few weeks.  I am sorry I did not get this up on the website earlier. xoxoxoxo Jimbo

  • Keeping Hope Alive

     

    6-8-2008 by G.C.

    I remember my mom telling me a story or stories about my younger sister.  When she was 8 yr old, she had two surgeries on her eyes.

    Remember my mom saying that she was so little and been in lots of pain after the surgeries. She told my mom that her little eyes are hurting her and she was crying cuz she couldnt see or play.

    My mom was crying with her seeing her little daughter in huge pain. I think that she, my mom, was in bigger pain than my sister.

    And then, after the second surgery the doctor said to my mom that is never gonna see better, it is just going to be worse. And when my mom saw the glasses that doctor prescribed to my  sister, my mom paniced.

    Remember my mom crying many times trying to hide in front of everybody and saying that everything is OK. You KNOW ME AND I AM LIKE MY MOM. TRYING TO HIDE AND NOT TELL MY FEELINGS.  But I wanted to share with Jennifer that she should not give up hope.  My sister's eyes healed and maybe Jennifer's can too.  -submitted anonymously.  Thanks G.C. for your thoughts and story, we greatly appreciate your story. Jim

  • April Troubles

    APRIL 7TH, 2008 

    Jennifer came home tonight!!!  They ran dye tests of her shunt and determined that it was still in place and functioning.  The fluid in her stomach was most likely caused by her coughing from the pneumonia which caused muscle contractions and those caused the shunt to leak some; but it is still in place!  No surgery necessary.  They put the dye in her head with a needle which gave her a headache and a big knot on her head but those will heal and the fluid in her stomach cavity will slowly be absorbed into her system.
    Thank You, God!!!  And thanks to all for the prayers and kind thoughts.
    Love & God Bless,
    Dad, Da & Ron
    ------------------------------------------
    APRIL 6, 2008 - Jennifer's shunt detached from her stomach and she is back in the hospital in Redwood City.  She saw her doctor yesterday morning and she was making good progress in her recovery from pneumonia and then this comes along!!!

    Last night she was getting ready for bed and she showed me a large, hard lump on her left side - we pretty much knew what it was; fluid leaking from the shunt.  We went to the ER in Terra Linda (San Rafael) and they did a CT scan that confirmed that the shunt was detached.  So they made arrangements to transport her to the hospital in Redwood City where her neurosurgeon is and where she has had her earlier surgeries.  She will probably have surgery on Monday - in the meantime she is getting good rest and care,  Brendan is with her and they have fixed up a place in Jennie's room for him to sleep.  She is in room 660. 
    Love & God Bless - prayers please,
    Dad, Da & Ron
    APRIL 1, 2008 - Jennifer is home with me!!!  She was released this morning and we came home.  She is still recovering and will be for a week to 10 days.  Needless to say, she is very happy to be here instead of there  :o)

    Love & God Bless,  Dad

    MARCH 31 - Jennifer is still in the hospital.  She is much better than when she first went in but is still not well.  This evening she is going to have a CT scan of her lungs to determine the extent of the pneumonia remaining.  We walked around the corridor today and she gets up to go potty.  Her pain is not as bad as it was.  All-in-all she is on the road to recovery.  She is still getting anti-biotics and, of course, her regular medications.  They had to move her this morning because they needed the private room for a patient with chicken pox.

  • Jonathan Fong Gets the Ball Rolling

    December 16, 2007

    Hi Jim,
    My name is Jonathan Fong and I am a close friend of your sister Jennifer and Brendan.  We met you at her wedding.
     
    My wife Barbara and I are in the process of trying to help Jennifer and Brendan with their dismal finances and have started a donation account.

    Jennifer tells me that you can design websites and we would like to design a site to inform people of Jennifer's illness, current life issues, victories, needs and provide links to her educational sites and create a way for people to make donations to her account. Would you be willing to help?

    I initially thought of using one of the website packages or using a facebook or myspace page, but then I heard that you are an expert in this area.

    Barbara and I and several of our friends are looking at planning some events to raise donations also. We are thinking of golf tourneys, dinners, and trying to solicit some corporate monies too. We also are looking to solicit service donations such as home health, massages, physical therapy, home cleaning, meal preparation, auto repairs etc.; basically anything that can help the O'Hara's survive and that can ease their financial burdens.

    We have several people that are experts: I have an MBA and I specialize in healthcare finance and insurance, we have a couple of CPAs that can help with accounting and tax law, we have some nurses and home health people, I thinks there are a couple of attorneys, some very talented writers, and most of all there are a slew of eager people wanting to help.

    Please let me know your thoughts.
    Sincerely,  Jonathan Fong

    Of course I told Jonathan that it was a great idea - I was floored by his generousity ! -Jim
     
  • Thank you Connie Merritt !

    January 12, 2008

    My name is Connie Merritt and I would like to tell you about my friend Jennifer O’Hara.

    I became acquainted with Jennifer about 4 ½ years ago. At the time, she was enjoying excellent health and was one of the busiest people I knew. I couldn’t believe how much she could accomplish in a day. She was always on the go. It was exhausting just watching her.

    In addition to working 40+ hours per week supervising a corporate staff, she spent at least 4 nights per week volunteering her time for the benefit of her community. Jennifer also had an active social schedule- planning and hosting events at her home almost weekly. Her hobbies were as diverse as they were extensive: gardening, reading, traveling, cooking, camping, dancing, knitting, hiking, mentoring at risk youngsters, crafts, music, and my personal favorite--playing with her two kitties; the list was endless.

    It is a cruel twist of fate to have such a debilitating disease as Intracranial Hypertension strike such a vivacious young lady as Jennifer who was striving to make a difference and was living life to the fullest. I have seen Jennifer’s expansive and joyful world reduced to the confines of her bed or hospital room. She has repeatedly run into one obstacle after another. She will gain some of her sight back but develop tremors in her hands. The pain in her skull will subside but she develops pain in her legs. She has been forced to endure repeated surgeries to correct the same thing, over and over and over. It is with great sadness I have viewed a once bright and accomplished young woman gradually lower her expectations for her future. Any hope for a resumption of her old life seems remote at this point. Recently she told me that she would be grateful if she were eventually able to care for herself without assistance. 

    Jennifer was always a giver, not a taker; a participant not a spectator in life. She was the first person to offer a helping hand where needed and could always be counted on to lend a sympathetic ear to those facing challenges in their lives. As might be expected, she is not used to needing or asking for help. However, this disease has taken its toll not only physically but has also devastated her and Brendan financially. Help is desperately needed and would be accepted with much gratitude.

    Sincerely,

    Connie Merritt
    Certified Public Accountant

     GIVE A GIFT

  • Thank you Shirley Isola !


    January 6th, 2008

    My name is Shirley and I am one of the volunteer caregivers for Jennifer. Jennifer’s devastating and heartbreaking situation due to her illness came to my attention through her friendship with my daughter. I had initially been asked to stay with Jennifer for a couple of hours one morning when no one else was available. It was a real eye opener for me as I had not been able to imagine just how seriously ill Jennifer really is. I left that first day feeling very strongly that Jennifer should not be left alone as she was unable to care for herself and it would be an unsafe situation. I offered then to stay with Jennifer twice a week.

    The current situation would be grim under any circumstances but seems especially sad for a young woman of 32 who previously had a busy and productive life. Her days are unpredictable since her condition seems to be constantly changing. On a good day Jennifer is able to get out of bed and walk with assistance around the backyard or work on a craft project for an hour. On a bad day though and there are many, she is bedridden and in chronic pain. The disease has affected her sight to such an extent that generally she needs to have things read to her. Much effort is required by Jennifer to work on the computer researching her disease or making doctor appointments. She requires assistance to tie her shoes or take a shower.

    I have found Jennifer to be an extremely sweet young lady and truly a joy to be around.

    She has shown tremendous courage in the face of extreme adversity. Despite the discouraging prognosis, Jennifer has been trying to accept her situation and be positive and hopeful. Recently though, an unforeseen decline in her medical coverage has created much additional stress and anxiety. In addition to her daily physical challenges, she and Brendan have found themselves overwhelmed by medical bills. 

    Any help you may be able to offer would be much appreciated.

    Shirley Isola

    Shirley visits Jenn twice a week to administer care. Thanks Shirley !

    GIVE A GIFT
  • From Ron Corkrey - Jenn's Dad

     

    December 30, 2007

    Jennifer and Brendan were married on February 4, 2006.  While on their honeymoon in Hawaii Jennie began to notice her eyesight deteriorating.  Little did she know that this was the beginning of a long journey of countless surgeries,  loss of her employment, and a life of persistent pain and torment.
     
    On returning home she went to see her optometrist to have her eyes checked; he gave her a new prescription for glasses.  A week or so later, when she got her new glasses, she was surprised to find out that they did not help improve her vision. He recommended she see her general practitioner to eliminate a brain tumor, diabetes, & MS, or another condition.
     
      After many scans and tests, she went back to the optometrist who said her sight was rapidly deteriorating and recommended that she go to an ophthalmologist.  The ophthalmologist examined her optic nerves and blood vessels and determined that Jennifer had Pseudo-Tumor Cerabri; now called Intracranial Hypertension, a condition where an increased amount of cerebral spinal fluid causes severe headaches and blindness, and other severe symptoms.  Her body manufactures too much cerebral spinal fluid which in turn causes pressure on her optic nerves.  By the end of March 2006, Jennifer was blind.
     
     "These are probably the severest headaches known to mankind," said Dr. Emanuel Tanne, president of the Intracranial Hypertension Research Foundation. "They are many times worse than a migraine. No medication works. The headache is often described as feeling like a hot poker being driven into the head. "These patients suffer terribly."
     
    A neurosurgeon then gave Jennifer several spinal taps which gave no relief.   In June of 2006 Jennifer had the first of eleven surgeries to place a shunt from the base of her spine to drain excess fluid into her stomach cavity.  Her body kept rejecting the shunt and an eleventh surgery was performed in December of 2007 to remove the old shunt and to replace it with one that goes directly into the ventricle of her brain, runs internally down her neck behind her right ear and ends in her stomach cavity.  So far this one has stayed in place and is functioning well but Jennifer still has an enormous amount of pain, momentary blindness, loss of memory, nerve pain in her legs and arms, and depression.

     GIVE A GIFT

  • Thoughts and Prayers from the Brills

    Mon, 10 Dec 2007

    Jennifer & Brendan -
     
    We heard the latest through Jimmy.  We can only imagine the frustration that you are dealing with - Please know that our thoughts and prayers continue to be with you both as you continue this uphill battle.  You have so many people pulling for you and praying for your full recovery.  Hang in there and know that we send you love and prayers daily.
     
    Thinking of you-
    Rachel, Mike, Lauren and Reagan

  • My Friend Jennifer

      By Barbara Fong

    My friend Jennifer is a get-up-and-go-woman, she is driven and her mind never stops – she gets things done. She goes for the brass ring with immense courage and will try anything once (or twice). She has a quick wit, global sense of humor and doesn’t skip a beat in conversation, planning, vision or solutions. She is a terrific listener and remembers the important things. She has calligraphic handwriting and a beautiful sense of color and style. Jennifer cares deeply about people, celebrating life-long relationships with a big extended family.

    Over the last 22 months, all that skill, energy, tenacity, perspicacity and humor has taken on “Life With IH” as Jennifer has battled to learn what limited body of knowledge exists about this mysterious ravaging disease; learn how the medical, legal and support professions perceive the disease and mostly to prepare her soul for acceptance of irrevocable change from honeymoon new-marriage dreams to devastating brain dysfunction, chronic pain, career halt, income loss and spending 90% of her life resting and waiting.

    Beginnings of anything are difficult and at first, new life with IH infused our world with a chaos of heartbreak, bleary hopelessness and confused rage. Over time, Jennifer has come to frame this world with prayer, patience and vigilance. As there exists no certain path for treatment, each surgery or procedure was approached with weeks of Jenn monitoring her physical issues, getting scans by hook or by crook, multiple phone calls and visits with the layers of doctors to gain consensus on the best next step. Jennifer would then muster the big courage – being the one to undergo the best-guess treatment – and surrender to the oncoming hospitalization and surgery date. She’d start with ‘can’t believe I have to do this again’ to “hold my hand, we can do this”. Most post-surgery hours were marked by her groggy vmail announcing ‘We did it, it is done’ or a text message stating terror overcome.

    With each surgery or treatment Jennifer adjusts her hope, her faith settles from even deeper in her heart and her fortitude replenishes itself. She acknowledges the efforts of all medical personnel by name, no matter how sick she is or how scared of the treatments. I think her Kaiser handle ought to be “Houdini O’Hara”, as she has perfected the 48 hour hospital stay. Against all odds, a few hours after surgery, you will see her walking, eating and hitting the loo fulfilling medical requirements for hospital discharge – and she is on her way north back to Sonoma County.

    Jennifer always holds on to her role in our lives, not giving in to the multiple replays of surgery and recovery, that holds her in pain-filled rooms. She gathers women at her home for catch-up evenings, has a mentee through a local mentoring program, stays involved with her large family’s happenings and always commemorates other’s milestones with cards (some hand made), letters, gifts and phone calls.

    The beginning was supposed to be something of an ‘end’ or at least the start of the solution. I joined Jennifer in her hospital room for the first time in the spring of 06. She’d just had a couple of harrowing (read, really-not-gone-well-at-all) spinal taps, her eyesight was heavily compromised and she had ravaging brain pain. She couldn’t move without setting off fireworks under her skull. Her mini-stuffed animal was nearby and the ubiquitous ice pack on her head. When I got there we held hands and cried and prayed out loud (quietly).

    Since then we’ve had lots of bedside visits, some in silence, some eschewing all medical references, some talking only of Why, How Come, and When will it stop. Some of those chats had Jenn with painfully swollen IV sites, some had her crushed by ignorant staff advise such as “just get up and walk’ or ‘just do some sit-ups’. Some visits broached the new centers of pain after the lung was used for the drain, instead of abdomen. Some visits were flabbergasters, such as right after the shunt was moved to the brain; even with her hair gone, her exotic eyes twinkled with satisfaction because she escaped the hospital in record time again. 48 hours after surgery and Houdini O’Hara rode home! We even contemplated requesting her insurance cover the addition of diamonds or emeralds to the 16-22 metal staples being constantly re-applied to her abdomen…we didn’t.

    From the first the dichotomy was in motion, her body veering away to hospital and emergency room, captive to the disease, yet spirit & mind alive, learning and grappling for balance. From the first hospital visit, Jenn pegged the names of her nurses and support staff; I was amazed to hear her call them by name. One hot summer stretch Jenn spent hours rocking in unnamed pain, wailing hopeless epitaphs and then, she surrendered to hope and prayer summoning the courage to head back to the hospital. I suspect that my friend Jennifer will never let go of her focus; shaped by spiritual principles and applied with courage to think logically in the midst of the swirling opinions and medical head-scratching.  because of her strength, I get to keep my friend and am honored to share this chapter of her life.

     

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  • Jim's Thoughts

    January 15th, 2008
    Brother love is tough sometimes.  Oh she'll be alright.  Rub some dirt on it.  She's fakin' it.  Jennifer will get over it.  Hang in there. Be strong, you can do it.  Brother love is too tough sometimes.  I love Jennifer dearly and her disease has hit me like a ton of bricks.

    It's not about me, but I had waited so long to really get involved.  I hoped it would be something quick, something easy for the doctors to just fix and then we could all move on.  It's NOT something quick or easy - in fact this IH has been torturous to my little sister.  Sure, I prayed and called and sent cards and gave my support the best I could.  Or did I?  I am ashamed that I did not get more involved and involved more deeply.

    I am so grateful for the email from Jonathan Fong - it was a wakeup call for me.  Why was a person whom I didn't remember and someone outside my family willing to give so much time and effort to help Jenn and Bren?

    Why was he willing to help financially and in other ways and yet no one in our family had devoted similar efforts.  I was also ashamed of that.  Obviously, Dad and Brendan (and others) have poured out their hearts, time, effort, money, and love to Jennifer.  Where was the entire Corkrey Calvary riding in to save the day and help?

    Many years ago when Jennifer was choosing to make very bad decisions instead of being high on life - it tore me apart.  I thought she would die, no, I was convinced that I would be flying to California for her funeral.  Then, she came through the fog of denial and stopped heading down that dark dead end path.

    She started a new life.  She found love and hope and joy.  She found Brendan and a job she (almost) loved.  Oh, I was so excited for her - she'd had so many big and little setbacks along the way.  Now, it was going great and she deserved it.

    Then IH found her at the peak of her exciting new life - on her Honeymoon..... Back to dispair and depression seemed like the natural course of things.  Eighteen months of pain, surgeries, recovery, pain, cruel excitement and devastating disappointment at every turn.  So many people would ask, "How's Jennifer?"  My reply was always positive even when the news wasn't.

    The glass was half full but the bottom of the glass had been missing for months and months.

    Emergency rooms, misdiagnosis, tubes falling out, headaches, dizziness, pain.  DID I MENTION PAIN ?????  I don't know about your pain threshold, but I am one big _ _ssy when you compare me to Jenn's unbelievable will and determination.  Oh sure, she's wanted to quit and end it all to stop the suffering at times.  WHO WOULDN'T after 11 surgeries????  Each surgery brought false hope of a "cure."  There is no cure - hell, the medical community doesn't know the cause either.  Someday it will.

    Finally, the 11th surgery with a shunt drilled into the skull.  I don't want to get ahead of ourselves, but after two months - this just may be the light at the end of the tunnel we have hoped for all this time.  God Bless Jenn.  I love you - YOU give ME Hope!!!

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  • Jenn's Thoughts on Mom

    Good Morning My Favorite People!

    I apologize for lack of communication about the memorial mass for Mom last Sunday.


    Mom in Puerto Rico in 1990

    It was very nice. They had mom's name on the wall- in her memory, (all the parishioners who died in the past year). Then at one point in the mass they read all the names on the wall, saying the name of the person one at a time, pausing with the ring of a bell, & then pausing. Then prayer of the faithful were said with WE REMEMBER, for example,

    With the changing of the seasons, from spring to summer & fall to winter: WE REMEMBER - As our hearts hurt & we live each day in God's grace: WE REMEMBER As the holidays are near: WE REMEMBER - & so on…. Very nice. . .  & we do remember. There were nice songs sung by Dad & the choir, nice incense burning, (not the stinky kind). Lara, myself, Brendan, of course dad, & my friend Deja, her daughter Melanie, & her new husband Garrett also came. Then we all went back to the house & had some nice lunch.

    It was a very moving mass & we all had a very difficult time not exploding in gut wrenching cries. It was just another reality that she has really gone home, her name on the wall, it was like take her name down off that wall, she should be here with us in the front pew, not having a mass said in her memory. But it was a very positive part of all of our healing. It was a nice feeling to know that she is remembered & not forgotten by the parish. I know for me, it is so important for me to talk about her, talk to her, keep her a live, keep her going, hold her in my heart, I am sure you have the same the same feeling. Let's talk!

    I wish each of you could have been by there, we miss you & know that you too wish you could be here too. I have attached a copy of the card I sent on all of our half's to the church. I hope somehow some way each of you are feeling some healing in your heart.

    Sending lots of love & hugs & kisses. Hope you are staying warm.
    Send pictures! Send notes!
    Love you,
    Jennifer K. Corkrey

LOOK AT THESE TURKEYS  ----------->


PICTURE OF RON & BREN MAKING TURKEY
 

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